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In the beginning…

I was clueless.

My husband was diagnosed with MS 6 months before we met.  He told me about it before we even went on our first date.  I thought I knew what I was in for.  I had several friends who had parents with MS and thought I knew what the disease might entail.  MS was a physical disease, it affected muscle control and made someone tire more easily.  I could handle that.  No problem.  By the time I realized just how much MORE MS could be I was emotionally invested and not getting out without major pain. I still had no idea of the cognitive impairment possible or the severity until 7 years into my marriage when my world just fell apart at the seams.

Since 2007 I have delved into a world of confusion, lies, deceit, dementia, impulsivity, disinhibition, lability, depression, anxiety, occasional violent behaviors.  Let me tell you had someone given me a preview of coming attractions when my future husband mentioned he had MS I may have skipped that first date and have had a whole different life.

But there is a reason we don’t know our future, most of us would run screaming for the door.  And given my upbringing, and my personal belief system I will not run screaming now.  I’m in this for the duration, “til death do us part” if you will.

What I hope to do with this blog is be honest, what life can be like when living with someone with MS who is on the entire other end of the spectrum from those I knew 17 years ago when I decided it was okay to date someone with MS.  I don’t want to scare people away from potentially wonderful relationships, but I do wish I’d known all the possibilities back then, perhaps being 27 and optimistic I may have taken the same chance and knowing myself I probably would have.

In the beginning I was naive.

 
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Posted by on August 8, 2014 in History

 

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Introducing…

I have had a blog for about 7 years, in the beginning I posted a lot, it was random and silly and mixed in with many posts about having a husband with MS.  It was an outlet for me, sometimes I whined, other times I really spoke from the heart.

I intend for this blog to be much more focused.  My topics will be MS (multiple sclerosis) and the many ways it can affect a life such as physical disability, cognitive dysfunction, dementia, lots of fun topics all told from my personal perspective.  As well I may touch on veterans issues as my husband is service connected and covered by the Veterans Administration. The ongoing struggle for benefits from the VA will be a fun topic to tackle.  I will also bring forward some of my past posts that are relevant.

So if you are reading this, thank you.  I hope to help other spouses of MS patients as well as spouses of disabled veterans who may be seeking benefits, and hopefully anyone who has ever had to take care of or advocate for someone who they loved who could not do it themselves will find something here.

Hang on it’s bound to be a wild ride.

 
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Posted by on August 7, 2014 in Purpose

 

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