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Respite Care…

15 Sep

For my sanity I need to use the respite care that is available to me for my husband.  What all does this entail?  Well because he is part of the Spinal Cord Injury and Illness Center at the VA he is entitled to spend up to 30 days a year there in respite care.  This means I can drop him off and the nursing staff will take care of his meds, and his physical needs.  He will be fed three meals a day in the dining room.  A recreation therapist will work with him and other veterans during the days to prevent total boredom.  He will get time in physical and occupational therapy.  Any appts he needs can be taken care of while he’s there too.  And I get a break, my house all to myself.

They encourage me to use this service and until now I have not done this.  I should have.  He has been part of this clinic for almost a year now and I could have had a month off?  Why didn’t I do this?  I will be using this going forward. I plan to schedule one week each quarter to just unwind.  I hope to take at least one great beachy or tropical vacation with a friend or my sister during one of these visits.

I think I was afraid that his family would object, but after our camping trip last week and they saw just how bad he has become they have no complaints at all and understand why I need a break.

So I’m planning – will get him a MiFi so he can use his laptop as the VA in Syracuse has no open WiFi for patients.  Will send him with a stash of his favorite snacks.  Will send some DVD’s he can watch on his laptop as the cable there is not full of choices.  Hoping that the first one goes well so I can enjoy these breaks 4 times a year without guilt.

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1 Comment

Posted by on September 15, 2015 in Caregiving, Cognitive Loss, Daily Living, Dementia

 

Tags: , , ,

One response to “Respite Care…

  1. Matt

    February 16, 2016 at 12:25 am

    I stumbled across this blog in a random search for something unrelated, and it’s just heart wrenching. Maybe that’s unfair, I have only this brief glimpse into your world, but I can just feel a stifled scream between the lines of text. Many full-time caregivers reach a point where they feel totally isolated, cornered, worn down beyond anything they could have anticipated, and desperate for something to snap. That is not uncommon.

    I hope you managed to find some extended help or respite (Beyond even these 30 days), either from family or from the state. No one should be expected to bear this sort of burden by themselves.

    Like

     

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