Living our life…

15 Sep

So following the theme of living our lives and not letting this disease stop us we took off two weeks ago with all three dogs and our cat for a long trip in our camper.  We traveled 4.5 hours the first night and slept in a Cracker Barrel parking lot.  No electric makes that interesting.  The battery provides enough power for lights and to run the water pump to flush the toilet, etc.  The fridge runs on propane BUT we realized when we stopped at midnight that the propane had run out.  DOH so a full fridge and freezer and it ended up being 10 hours before we got propane.  But it was okay.

The nice thing about the camper is you have a bathroom with you all the time, but there is not always a safe and efficacious place to stop and walk from the truck to the camper and get in to make this happen.  Day two had us pulled over in a cul-de-sac with our 35 foot camper and a clothing change caused by an accident.  People were home and likely wondering what on earth we were doing there.  I kept waiting for cops to show up but they didn’t and we got back on the road.

Finally checked in and set up at the first campground where we were spending 4 nights with my husbands sister and brother in law and his brother as well.  It was HOT, super HOT which is not so good for MS and the campground electrical was subpar so we kept losing power and browning out.  Not good when it’s in the 90’s and I have to leave 4 animals in a tin can all day.  Thankfully these power outages seemed to be only when we were there.  We also spent 2 days on the lake on a pontoon boat.  So much fun but so draining.  Husband was BEAT.

On Labor Day we moved on – pulled out around 2pm and had a 3 hour drive to our next destination.  Got in and got set up there by 6pm and then stayed for 7 days.  Was not nearly as hot and much more relaxing.  Hung out around campfires and went to bed early.  7 nights and not a single accident (WINNER WINNER) but to really test my patience the cat decided to pee on my bed.  Thankfully I have a waterproof cover (of course) so she did not ruin my bed.

After 12 full days living in the camper and a 10.5 hour drive home we arrived home last night.  I am happy to be here for sure.  BUT this trip helped me realize that a winter in Florida is not really out of the question.  The camper is comfortable and roomy and if I rearrange storage a bit we will have no issues.  So if the VA ever gets their head out of their A$$ and we get our current issue settled we can indeed manage Florida for Jan/Feb.


Posted by on September 15, 2015 in Caregiving, Daily Living, Dementia


3 responses to “Living our life…

  1. marilynn rask

    September 15, 2015 at 7:25 pm

    wow what an adventure where in florida I live in So. Florida born here, but lived many place while in the military. It has changed so much. wish we could try this too, but because he cannot more from the waist down, losed the use of both legs years ago and is now losing the use of right arm and the motorized wheelchair is huge. glad you could do this. good luck and best wishes


    • marriedmonster

      September 15, 2015 at 7:33 pm

      We are looking at Tampa Bay Area – campground we want to stay at in Jan/Feb is in Ruskin. 🙂


      • marilynn rask

        September 15, 2015 at 11:19 pm

        Tampa is a great area, since I was born and raised in West Palm beach we ended up here when he became sick. We had property in Orlando/Kississimme area but as the story goes it wasn’t meant to be. DAMN disease. Tampa is across from us. Have a great VA hospital in St. PETE. Hope it happens for you. It’s great place to visit. I just don’t won’t to live in Florida. wanted to stay in Texas. keep in touch.



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