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Monthly Archives: October 2014

Moving right along…

The turn out seat is installed in our truck and we are currently at a guest house for the night and will be checking into the SCI and MS clinic tomorrow morning at 9am.  Tomorrow is sure to be a very long and tiring day for both of us.

Things that I’m hoping for and ASKING for:

  • A lift – something to get him back up off the floor should he fall and be unable to assist me with getting back up
  • Regular Physical Therapy in our home!
  • Cognitive or Speech Therapy or both (he is still struggling to speak)
  • Assistance getting his claim fast tracked in NYC at the Regional office.

I’m sure I’ll think of more things as we go along.  So three days of HELP is coming up and I am so thankful just to be here.  Also loving the guest house where we are staying tonight as they have a handicapped accessible room for us and a lovely guest home with TV for my addicted husband.  And DINNER was provided too, I had buffalo chicken mac and cheese, he had some minestrone soup and bread.  All for the bargain of $35 per night.

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Posted by on October 28, 2014 in Daily Living

 

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Today was better…

Small victories, today I had no urine soaked anything to clean up.  Today I did not have to pick my husband up off the floor after yet another fall.  Today we talked a little bit and we cuddled for awhile.  Things are different for sure but laying in each others arms makes things feel a bit more normal and the bad a little easier to face.

Some things are starting to fall into place – We are going to an SCI clinic where he will get 3 days of  assessment and help planning for the future and what that may mean for us.  The wheelchair ramp is ordered and should be here in 3 weeks.  They are also installing a seat similar to this to our truck so I can get him in and out of the truck much easier.

Still so much up in the air but after a series of very bad days it was nice to have one that was not horrible.

 
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Posted by on October 4, 2014 in Daily Living

 

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A new low for me…

bitch

Today I found myself in the men’s room.  TWICE.  First time at the VA when my husband pulled the call button for help and a shrill alarm started sounding outside the door as well as flashing lights.  I went in to check on him and we turned off the alarm, but it rang for nearly a minute.  Sadly no one else showed up so those alarm buttons in the bathroom at the VA?  Don’t expect much.

The second time we were at Outback for lunch.  He insisted on walking in rather than me getting out his wheelchair.  We get from the truck to our table (about a 15 minute excruciating process) and then he says he needs to go to the bathroom.  Of course it is in the very far back of the restaurant and so he starts making his way there an inch at a time with his walker.  I know this is not going to work and he is not going to make it.  So I leave him moving at a snails pace toward the bathroom and go out to the truck where I retrieve the bag of extra clothes and his wheelchair that he should have been using.

Soon I find myself in the men’s room at Outback, on my hands and knees in the men’s handicapped stall helping him get his wet jeans, underwear and socks off.  Helping him clean up and get clean underwear, socks and sweatpants on.  While I am on my hands and knees in the bathroom stall someone else comes in.   Once upon a time in another life I may have been a bit of a wild girl for a year or two, but this was definitely a first for me.

Even my husband had to laugh as I said “when you picture me on my knees in the men’s room I bet this was not what you had in mind…”

At least we can still find humor in this messed up life.

 
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Posted by on October 1, 2014 in Daily Living

 

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