The status quo has changed around here for sure. The latest attack that my husband has had really altered his personality. He is pleasant, laughs at everything (lability) and has not been getting angry at anything. This is very much out of the normal for him as he tends to be pessimistic and angry a lot.
He also can’t really walk very well, the stubborn part has not left him and he refuses to use the walker 90% of the time. This means that he frequently falls. Thankfully he has not hurt himself with these falls. YET.
He is not able to drive. I made that decision due to his slow reaction times and the number of things he hit and people he nearly ran over the last few times out with his power chair. His truck keys are very well hidden and I am firm on this. After a visit with his neurologist on Tuesday the doctor agreed that hiding the keys seemed like a wise choice. He asks for them occasionally and I have to say no.
He is midway through his second course of steroids, first one was 2 weeks ago. Only moderate improvement after the first course of steroids, hoping for a bit more dramatic improvement this course, but of course only time will tell.
His neurologist put in a non-formulary request to start my husband on Tecfidera a new oral med for MS, he said that usually takes about a week, so sometime in the next week he should receive his initial supply and we get to try another MS drug. Hoping for the best here.
In the meantime I continue to work 3-4 evenings a week for 5 hours at a time. For the first 2 weeks following this attack I had arranged for people to sit with him, to make him dinner to make sure he doesn’t fall and get hurt. But the available people have dwindled and we did a few trials with him staying home alone. He was fine. I made him keep his cell nearby and he was on strict orders to reply to any text messages I sent or I would start calling and then I would come home if still no reply.
So still praying that this is not the new normal but also not really hating how easy going and agreeable he has become.